New patient referral fax:
For new patient referrals, please include patient demographic sheet, pertinent labs, imaging reports, office notes, and insurance information.
Our clinic is a certified Duchenne Care Center by the Muscular Dystrophy Association and the Parent Project Muscular Dystrophy. We treat children of all ages, from diagnosis to their transition to adult care.
Duchenne Muscular Dystrophy (DMD) is the most common form of muscular dystrophy and typically affects boys. It usually starts between ages 2 and 5 and affects many aspects of a child’s health, from their ability to walk to the strength of their heart and breathing muscles.
Children’s Health neuromuscular disease experts understand the specific ways that muscular dystrophy affects breathing, heart function and other aspects of health. We collaborate with specialists from pulmonology, cardiology, rehabilitation medicine, orthopedics, endocrinology and nutrition to give patients the best possible care.
We use preventive care to keep your child’s body strong and avoid complications. Our preventive approach includes devices that help support breathing to prevent respiratory illness, and heart medication that helps kids stay healthy and active.
We also prioritize normalizing everyday tasks and experiences like getting ready for school, playing with friends and getting around the community. Together, we are ready to help your child retain their strength, prepare for changes.
There is no cure for muscular dystrophy. However, some medications are able to slow muscle weakening and many physical therapies help strengthen muscles lungs, preserve mobility and independence. Our DMD team works together to design a personalized care plan for each patient that is based on:
At Children’s Health, our muscular dystrophy team includes experts in neurology, cardiology, pulmonology, gastroenterology and physical therapy. Our specialists work together and create a care plan that’s customized to your child’s specific needs.