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Adult Congenital Heart Disease

Adult Congenital Heart Disease

As one of only a few nationally accredited medical programs for adult congenital heart disease, our experts offer a full spectrum of care for patients of every age.

Congenital heart disease doesn’t affect only children – and Children’s Health℠ doesn’t treat only pediatric patients. Our experienced pediatric and adult cardiologists offer comprehensive care and treatment for patients at every age – from newborns to teens and adults. We bring together nationally renowned heart experts from four medical institutions who collaborate to provide specialized treatments that are tailored to the specific needs of adults who have been managing heart defects since birth.

Conditions We Treat

  • Aorto-Left Ventricular Fistula
  • Bicuspid Aortic Valve-Associated Aortopathy
  • Cardiac Tumors
  • Conduits, valved or nonvalved
  • Congenital Contractual Arachnodactyly (Beals-Hecht Syndrome)
  • Cyanotic Congenital Heart (all forms)
  • Double-Outlet Ventricle
  • Duchenne and Becker Dystrophinopathy
  • Ebstein's Anomaly
  • Ehlers-Danlos Syndrome
  • Eisenmenger Syndrome
  • Endocarditis
  • Familial Thoracic Aortic Aneurysm
  • Infundibular Right Ventricular Outflow Obstruction of Significance
  • Interrupted Aortic Arch
  • Loeys-Dietz Syndrome
  • Myocarditis
  • MASS Phenotype
  • Mitral Atresia
  • Pericarditis
  • Pulmonary Vascular Obstructive Diseases
  • Single Ventricle (also called double inlet or outlet, common or primitive
  • Sinus of Valsalva Fistula/Aneurysm
  • Sinus Venosus Atrial Septal Defect
  • Subvalvular or Supravalvular Aortic Stenosis (except HOCM)
  • Thoracic Aortic Aneurysm and Patent Ductus Arteriosus

Treatment tailored to your needs

When it comes to treating adult congenital heart disease, one size doesn’t fit all. You need an experienced cardiac expert that understands the structural anomalies present in a wide-range of congenital heart diseases.

This expertise allows us to precisely diagnose, meticulously plan your treatment and help you reach your goals.

Collaborative care for complex conditions

Managing a congenital heart disease calls for a comprehensive approach to care. That’s why Children’s Health partners with UT Southwestern, to give patients access to world-class care at Children’s Medical Center Dallas, Parkland Memorial Hospital and William P. Clements Jr. University Hospital, depending on their medical needs and personal preferences. Our program provides access to a wide range of cardiac services to help our patients manage and treat their conditions, including:

  • First-time treatment and follow-up care
  • Transition to adult care
  • Surgical expertise
  • Health and lifestyle counseling
  • Support services, including social workers, financial counselors and nurse practitioners

Our team also helps our adolescent patients formally transition to adult care. Dedicated nurse practitioners, social workers and psychologists work with adolescent patients starting from age 16 to assess readiness, deliver education and facilitate a staged transition to the adult practice.

Advancing the standard of care for every patient

Our team is committed to improving care and support at every stage of diagnosis for children and adults with congenital heart disease. As a certified adult congenital heart disease program, we have access to the latest advances in care and clinical trials to help children and adults manage their conditions.

Meet the Care Team