Bone marrow failure syndromes are relatively rare and universally complex disorders. The Bone Marrow Failure Program at the Gill Center has the breadth and depth of expertise needed to provide complete care to children and their families affected by these hematologic disorders.
Led by Zora R. Rogers, M.D., a nationally recognized expert in pediatric hematology, the program manages ongoing treatment plans for children with congenital and acquired bone marrow failure syndromes, including Diamond-Blackfan anemia, Fanconi anemia, Shwachman-Diamond syndrome, idiopathic aplastic anemia and others. Approximately 100 patients are enrolled in the program with referrals coming from across Texas and surrounding states.
Our program is counted among the country’s strongest because of the extent of care we provide. We rely on a comprehensive panel of subspecialists with an express interest in bone marrow failure syndromes. These include endocrinologists, gastroenterologists, orthopedists, transplant physicians, surgeons (hand, oral and maxillofacial), pathologists, neurologists, cardiologists, radiologists and more – each of whom has acquired an expertise in bone marrow failure disorders.
Children and their families affected by these syndromes require years of comprehensive and qualified care, beginning with a clear diagnosis.
For children whose bone marrow fails or who develop pre-malignant chromosomal changes, a stem cell transplant may be required. Patients are referred for pre-transplant consultation to stem cell transplant physicians who are also integral members of the Bone Marrow Failure Program team. These patients are cared for by Stem Cell Transplant Program physicians for approximately two years during and after the transplant before returning to the care of hematologists in the Bone Marrow Failure Program. Given the increased risk of future cancers that occur in many bone marrow failure syndromes post-transplant, our team provides disease-specific recommendations for screening of at-risk patients and offers ongoing follow-up throughout childhood and adolescence.
See also Stem Cell Transplant Program and Sickle Cell Disease Program.