What to expect for epilepsy patients
Patient and family guide
The most important way to help your child and his or her physicians is to be an active member of your child’s health team. This means being prepared for visits, keeping records, learning to ask questions and advocating for your child. Networking with other parents of children with epilepsy may become a source of information, strength, and inspiration as you learn to live with your child’s epilepsy. And most of all, do not forget to take care of yourself – without you, your child’s number one advocate is gone.
For families interested in information about epilepsy surgery, access the A Parent's Guide to Pediatric Epilepsy Surgery site to learn more.
- Seizures and Epilepsy in Childhood: A Guide (Johns Hopkins Press Health Book)
- Mommy, I Feel Funny! A Child’s Experience with Epilepsy by Danielle M Rocheford
- Taking Seizure Disorders to School: A Story About Epilepsy by Kim Gosselin
It is highly recommended that an electroencephalogram (EEG) is performed before your first visit.
Kids Health has more information on EEGs.