Children with syndromic craniosynostosis require a team of specialists to best manage their care. The team should include doctors with experience in caring for patients with syndromic craniosynostosis. Team members include:
Ear, nose and throat (ENT) surgeon
Experienced nurses and physician assistants with experience in these disorders
It is best for a patient to see all of these specialists in one clinic visit. At Children’s Health, the entire team sees the patient in a single two-hour visit. Our team then sits in a conference where each specialist talks about the patient’s needs and a collective plan created by all providers is mapped out for the upcoming year. We always try to anticipate as many problems as possible in order to reduce risks presented by anesthesia in our surgeries. We follow our patients until they are fully grown adults.