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Syndromic Craniosynostosis Treatment and Care

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Children with syndromic craniosynostosis require a team of specialists to best manage their care. The team should include doctors with experience in caring for patients with syndromic craniosynostosis. Team members include:

  • Plastic surgeon
  • Neurosurgeon
  • Oral surgeon
  • Dentist
  • Orthodontist
  • Ear, nose and throat (ENT) surgeon
  • Ophthalmologist
  • Speech therapist
  • Child psychologist
  • Experienced nurses and physician assistants with experience in these disorders

It is best for a patient to see all of these specialists in one clinic visit. At Children’s Health, the entire team sees the patient in a single two-hour visit. Our team then sits in a conference where each specialist talks about the patient’s needs and a collective plan created by all providers is mapped out for the upcoming year. We always try to address as many problems as we can do safely in a single surgery reduce risks caused by anesthesia in multiple surgeries. We follow our patients until they are fully grown adults.

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