Cancer and Blood Disorders
The ACE Program at Children’s Health℠ and UT Southwestern Medical Center was established in 1989 and is the first and largest childhood cancer survivors program in North Texas. The ACE Program evaluates and monitors childhood cancer survivors from ages 4 to 62 years old. Objectives of the ACE program include patient and physician education, patient care, and clinical research in the late effects of cancer survivors. The ACE Program is a member of the Childhood Cancer Survivors Study (CCSS), the leading consortium in late effects research. Numerous studies from the CCSS have determined the frequency of late effects and identified risk factors for late effects in this childhood cancer survivors.
Children – especially younger children – often do not fully understand their cancer history, so we educate them about their cancer. They learn about the type of malignancy they had, how it developed and how it was treated. More importantly, they become aware of potential long-term side effects associated with cancer treatment, how to communicate these potential issues with physicians in the future, and how to reduce their risks of developing long-term side effects.
Each ACE Program participant receives a Cancer Treatment Summary that includes a description of their cancer diagnosis, detailed treatment information, complications encountered during treatment or any late effects, as well as a personalized plan for long-term follow-up care.
This comprehensive guide to establishing and enhancing long-term follow-up programs for childhood cancer survivors was developed collaboratively by the Children’s Oncology Group Nursing Discipline and Late Effects Committee. Over 50 individuals from multiple disciplines contributed to this Long-Term Follow-Up Program Resource Guide, providing a broad perspective from a variety of long-term follow-up programs within the Children’s Oncology Group.
More information available online at COG Survivorship Guidelines.
(Content from COG Survivorship Guidelines)