Toddler’s Journey to a Seizure-Free Life - Part 2 of 4
- Ella blows bubbles with Chloe and Sofie, her sisters.
- The trio plays instruments at their house.
- Ella’s sisters love to help her take medicine and the three are inseparable.
In it Together
Epilepsy has had a tremendous effect on the Grimes family. Their routine has revolved around medication schedules and everything stops when Ella has a seizure.
“We have started to venture out more to do things with the girls and just bring Ella’s medication with us,” Ashley said. “We don’t want our girls to miss out on life because of epilepsy. Epilepsy has robbed Ella of living her life to the fullest and interrupts her several times a day, while she walks, eats, plays, sings, learns at school, participates in therapy, takes a bath and sleeps just to name a few. But she has shown grace throughout all of this and is a trooper with every new medication and hospital stay.”
Ella’s sisters, 5-year-old Chloe and 2-year-old Sofie, have always known that Ella got a “boo boo” on her head and that she takes medicine for it. In fact, the girls’ relationship is so close that they both help Ella take her medicine by singing to her and dancing to make her laugh.
One of the hardest parts of dealing with Ella’s illness has been awareness.
“It is very difficult to get others to understand what Ella is going through,” Ashley said. “Her seizures don’t look like the ones you see in the movies – sometimes she talks in between them and continues on with what she was doing after the clusters have finished. Outsiders don’t realize how much the seizures affect her even though they look minor. We can never let our guard down because the seizures come without warning and happen several times a day. As a parent, it is hard to not have all the answers and make everything better for her.”