CCBD: Bleeding Disorders and Thrombosis

The Bleeding Disorders and Thrombosis Program at Children’s and UT Southwestern, led by Dr. Janna Journeycake, is a national leader in patient care, education, clinical research and advocacy. It is one of the 130 comprehensive hemophilia programs in the nation, which is funded by the Centers for Disease Control and Maternal Child Health Bureau. Dr. George Buchanan also serves as faculty in the Program.

We currently manage more than 175 children with established bleeding disorders and evaluate nearly 100 children each year for potential bleeding conditions. In addition, we treat and counsel nearly 100 new patients a year with thrombosis or thrombophilia. We specialize in the diagnosis and management of children and adolescents with the following conditions:

• Factor VIII and Factor IX deficiency (hemophilia)
• von Willebrand disease
• Factor XI deficiency
• Hypofibrinogenemia
• Factor XIII deficiency
• Qualitative platelet disorders
• Acquired bleeding disorders
• Prothrombotic conditions ( i.e., Factor V Leiden, Prothrombin gene mutation, Protein C and S deficiency, antithrombin deficiency, elevated lipoprotein a, antiphospholipid antibodies and lupus anticoagulant)
• Thromboembolic disease, including deep vein thrombosis, pulmonary embolism, catheter-related thrombosis, arterial ischemic stroke and perinatal stroke

Program Highlights

• Comprehensive Bleeding Disorders and Thrombosis Treatment Team consists of the following physicians, advanced practice nurse, nurse clinician, physical therapist, social worker, research nurse, clinical research coordinator, and administrative assistant devoted to the specialized care of children with bleeding and clotting disorders.
  • Janna M. Journeycake, MS, MSCS
  • George Buchanan, MD
  • Jennie Jones, MSN, RN, CPNP
  • Michele Carlin, RN
  • Micah Wright, LMSW  
  • Anna Winborn
  • Paula Mason
• Comprehensive Bleeding Disorder Clinics are held most Wednesday at the Dallas campus. We have quarterly clinics at the Legacy campus nearby in Plano. Thrombosis patients and new patients needing evaluation for bleeding or clotting disorders can be seen on any day of the week
• Close affiliation with the Department of Pediatric Dentistry provides comprehensive and safe dental care for children with bleeding disorders and those on chronic anticoagulation
• Affiliation exists with UT Southwestern’s diagnostic hemostasis laboratory and the adult component of UT Southwestern’s hemophilia program
• We participate in a 340B Drug Pricing Program, a federal discount program available to designated Hemophilia Treatment Centers
• Outpatient management of anticoagulation therapy
• Development of multidisciplinary guidelines for treatment of acute stroke and participation in a comprehensive long-term follow-up clinic for children with stroke
• Community outreach:
  • Nurse coordinators’ school visits and lectures to students and staff
  • Education for community physicians and families with inherited thrombophilia about diagnosis, screening and prevention of thrombosis
  • Education for community physicians about diagnosis and treatment of bleeding disorders
  • Active participation and support of NHF and the local chapter, TexCen
  • Participation in a yearly Education Day for Families
• In July 2012, 39 Center for Cancer and Blood Disorders patients attended Camp Ailihpomeh, the week-long summer camp for children in Texas with hemophilia. In addition, members of our team have served as the camp director or co-director for the last four years.